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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jul 2012
Posts: 12
New_Member
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OP
New_Member
Joined: Jul 2012
Posts: 12 |
Not really sure if this is a good place to put this. if it is inappropriate here please direct me! I wrote this today - hoping to create as a non scientific, easy to understand post to explain to friends and family what AS can be like and involve. I've asked for help from other ASers to get it right and add in anything I forgot. Please feel free to tell me if you think I missed anything. Normally my blog is for low starch/carb recipes but I realised it might be helpful to have a good description of the disease itself. It turns out others wanted to share it - which is nice. My blog earns me no money - so I am only posting to help anyone raise awareness. So please feel free to share if you think it's any help. Many Thanks for reading.  http://cigarettesandmeltedchocolate.word...e-horses-mouth/
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Joined: Mar 2013
Posts: 135
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2013
Posts: 135 |
AS since February 2013
NSD - as of yet no medication.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Good job with your blog. Thanks for sharing.
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jul 2012
Posts: 12
New_Member
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OP
New_Member
Joined: Jul 2012
Posts: 12 |
Thanks guys!
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Joined: Apr 2013
Posts: 372 Likes: 1
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Apr 2013
Posts: 372 Likes: 1 |
L ove it! I've shared it on the Facebook page: " A S and Me - Ankylosing Spondylitis" ( www.facebook.com/AsAndMe) It captures things we don't always think of. I found out this week I have a Thyroid disease as well (waiting on a biopsy to rule out cancer  ). I never considered thyroid issues to possibly be associated with AS but I guess apparently they may be.
Nicely put together.
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Joined: Jul 2012
Posts: 12
New_Member
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OP
New_Member
Joined: Jul 2012
Posts: 12 |
thank you. wish you the best of luck with your tests :s I will check out your page. Thanks for sharing.
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Joined: Aug 2010
Posts: 23
New_Member
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New_Member
Joined: Aug 2010
Posts: 23 |
Thank you so much! I absolutely love this definition. It is the best I have seen. I also experience time of skin sensitivity but I am not sure it is the AS or something else.
Heather
diagnosed AS 2010
enbrel
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Joined: Aug 2013
Posts: 15
New_Member
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New_Member
Joined: Aug 2013
Posts: 15 |
There were some great pieces of information in that post, but I felt it was a bit heavy on the doom and gloom. I don't want to minimize the suffering that anyone with a severe case of AS goes though - but I really don't want to add to it.
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Joined: Nov 2013
Posts: 22
New_Member
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New_Member
Joined: Nov 2013
Posts: 22 |
Red,
That is about the best explanation that I have read. I think you hit on all of the significant issues involved with this terrible disease.
I have thyroid problems which is probably related.
Is it okay to e-mail your definition to my family members?
Thank you for taking the time to post this.
Regards,
TheWino
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Joined: Mar 2013
Posts: 56
Active_Member
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Active_Member
Joined: Mar 2013
Posts: 56 |
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