I keep wondering if he remembers how bad I had it at the end of March after 3 months off mtx, having endured week after week of sinus infections. I had taken so many painkillers and they didn't work. I limped everywhere and tossed and turned all night long. It was asking for more painkillers that got me kicked to pain management. He just doesn't understand that continuing to medicate AS with painkillers doesn't help. "It's the inflammation, stupid!" Sheeesh. A steroid taper put me back in the pink till the mtx could get up to speed. He saw the difference between painkillers and steroids, but makes comments like today that just [*bleep*] me off.

Now that the mtx is working again, the limp is gone and most of the tossing and turning nightly is gone.

Keeping a stiff upper lip, stoic demeanor, it doesn't help us. Our spouses don't get a clue as to what is happening to us. Our doctors don't know we are still in pain.

I don't remember who mentioned it a few weeks ago, but they said they finally got over the compliant patient style they had used in dr offices and began to complain about the problems they had. It's the only way to go. Guys/Docs need educating about what we are going through.

Donette...hope you doing better now. Hugs on dealing with hubby. Thanks for your response.


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9