Sorry you are having to deal with this. Its the occasional spousal arguments/lack of support that hurt me the worst.
AS can grind on and on and I keep a stiff upper lip but when hubby had to ask if I was "really that sick, or choosing to lay in bed all day" this past winter flare, I blew up. I crumbled inside and wanted to melt out of existence. He is usually supportive, I guess its normal to have a "discussion" like this sometimes. I want to weep just thinking about it, still.
It's like we try to be so tough living with this disease because its an IT, but when a warm body deals out pain to us, it is just too much. I hope it blows over soon. I try really hard to explain everything to my hubby. So maybe you could explain the whole conundrum with pain killers and AS. For me I build up a tolerance to them quickly, every doc is worried I might turn into a junkie, and they cause lovely constipation. Bottom line for me is: Pain killers aren't a long term option, which totally sucks by the way. Until I had AS, I foolishly assumed that in the year 2010 we'd have advanced medically to the point of being able to keep chronically ill patients comfortable. I am not comfortable. lol
Good luck,
Donette
