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#458435 12/18/11 02:23 AM
Joined: Nov 2011
Posts: 95
Apprentice_AS_Kicker
OP Offline
Apprentice_AS_Kicker
Joined: Nov 2011
Posts: 95
Hello all smile

NSD works for me.

I'd like to tell you that today, I'm experiencing a pain level of perhaps 1.

Little pain only, I haven't had any pills today either.

I hope I can continue improving with out setbacks.

Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256
That is great news Chicha! Stick with it!


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895
Congrats! The effort is well worth it. Keep up the inspiration.


AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
Joined: Nov 2011
Posts: 97
J
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
J
Joined: Nov 2011
Posts: 97
It's a nice feeling to be in control of your pain instead of the meds. doing it for you. Congrats!, Very Happy for you grin

Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839
well, welcome to the club smile


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Joined: Oct 2007
Posts: 1,731
Likes: 1
naj Offline
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731
Likes: 1
: D


______________________
Jan

Joined: Feb 2011
Posts: 238
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2011
Posts: 238
Good stuff! Keep it up wink

I've been very nsd-strict for a good while now, with good redults. A couple of days ago, out of the blue, I had two Starbucks drink "products" in the same day, with their mystery syrup-sweetners added. ( I normally only have water or chamomille tea). 36 hours later I ripped something between my shoulder blades, while blow drying my hair! Did I ever feel silly! And dumb.

I'm blaming Starbucks... they can take it. grin


B27+, 2nd Rheumy: 'inflammatory backpain'.
IBS + SI/lumbar/thoracic/cervical/knee/elbow stiffness & pain.
Managing inflammation very well with diet since Jan 2011.
Slow but consistent reduction in symptoms year by year.
Haven't seen a physician in years.
Took LDN (4.5mg) between 2013-2015, 2018-2019.
Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
Offline
Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256
Ask your coffee houses if they use any Monin syrups. They are starch free, and come in many flavors.

Monin Coffee Syrups Nutritional Info


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
Joined: Nov 2011
Posts: 95
Apprentice_AS_Kicker
OP Offline
Apprentice_AS_Kicker
Joined: Nov 2011
Posts: 95
Thanks everyone laugh

It's been like this for 3-4 days now, little pain if any. No pain pills.

I've been even drinking hot cocoa a couple of times a day, and I had noticed before that it's not perfectly healthy for my gut, it upsets me a bit but I love chocolate lol.

One thing has been bothering me tho.. reflux. I will look for info on that in previous posts and if I don't find any I will make a new thread, but long story short, I've been having reflux problems, to the point that my throat is very funny looking, like when you have an infection, which is possible but I am scared that it might be the acid from the stomach that's causing it.

Joined: Nov 2011
Posts: 256
Third_Degree_AS_Kicker
Offline
Third_Degree_AS_Kicker
Joined: Nov 2011
Posts: 256
Never hurts to stop by for a swab for flu or strep. Get a head start on treating it, if that's the case. I'd have the reflux checked out as well. Even if it's not causing your current problem, it's not something you want to allow to get out of control.

Hope you're feeling better!


Iritis first diagnosed in 1991, presently recurrent and steroid resistant.
Tested HLA B27 positive in 1996.
AS diagnosed October of 2011.

Putting most of my eggs in the NSD and exercise basket, using only TENS, massage, heat and ice, and NSAIDS (sparingly) for pain. Drops for iritis as flare necessitates. Looking back I feel I would have been diagnosed with AS years ago, if I had found a rheumy earlier than 2011.
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