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Joined: Dec 2003
Posts: 624
Master_Sergeant_AS_Kicker
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OP
Master_Sergeant_AS_Kicker
Joined: Dec 2003
Posts: 624 |
Ok, I am asking for a friend. Is there anyone here with FIBRO who could recommend a doctor...Toronto Area? The Rheumy's in our town (Waterloo) really blow and the Fibro Doc at Toronto Western Hospital (where I go) passed away last year and no one has filled in.
Inanna? Mig? Anyone else? Any suggestions would be great appreciated.
Thanks!
Amy:)
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Unfortunately, Amy, my doctors cannot agree as to whether or not I have fibro, so I've never seen a fibro doctor. Not much help, I'm afraid.
Mig?
Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Dec 2003
Posts: 624
Master_Sergeant_AS_Kicker
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OP
Master_Sergeant_AS_Kicker
Joined: Dec 2003
Posts: 624 |
Arggg....lol............yeah this is not pour moi, a women at work who is getting the run around from the local Rheumy.
Thanks!
Amy:)
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Sorry. A few years ago, my first rheumy at TWH did all the points for fibro. I nearly went through the ceiling on 11 of them. He actually asked if it really hurt that much. I responded through clenched teeth to the affirmative. And he agreed fibro was a factor. About six months later, he checked them again they weren't quite so tender. So, he said fibro isn't a factor. I related this to my GP at my yearly that year and she scoffed at him changing his mind. To her mind, fibro flares just like other arthritis. That being the case, it makes sense that one visit I'd go through the roof and the next I might not. My proof that I have fibro is all the pain in my muscles even on biologics. Nothing touches it except my favourite salve. I hope your friend gets someone to listen soon. She's lucky to have you helping.  Warm hugs (and it's good to see you),
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
I had a dr in Toronto who is a fibro doctor. He knows his stuff, but also has 0 personality and bedside manner. But you will get diagnosed properly. It takes about seven months to see him, and then there is only one appointment per person; he does not do recall patients, and now follow ups. Let me know if you want more details.
I'm actually going to a rheumitologist in Toronto that deals with arthritis and Rheumitology together. That is on Tuesday. I will keep you posted.
Sam
Samantha
A.S.
Fibro
Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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Joined: Dec 2003
Posts: 624
Master_Sergeant_AS_Kicker
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OP
Master_Sergeant_AS_Kicker
Joined: Dec 2003
Posts: 624 |
I want more details......lol
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Joined: Dec 2003
Posts: 624
Master_Sergeant_AS_Kicker
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OP
Master_Sergeant_AS_Kicker
Joined: Dec 2003
Posts: 624 |
Good to see you too!! Amy:)
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Sorry I can't help Amy. I don't have fibro. I didn't even know there were specialists in fibro, until reading about Sam's experience, once upon a time.
Good luck to your friend!
mig
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Joined: Dec 2003
Posts: 624
Master_Sergeant_AS_Kicker
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OP
Master_Sergeant_AS_Kicker
Joined: Dec 2003
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Joined: Feb 2004
Posts: 854
Master_AS_Kicker
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Master_AS_Kicker
Joined: Feb 2004
Posts: 854 |
Typing is hard these days. Can u pm me a number that
I can reach u at and a good time to call?
Sam
Samantha
A.S.
Fibro
Undiagnosed Chronic Fatigue
Live like nobody is watching, Love until you can't and Travel to the moon & back
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