Kickas.org Forums Treatments, Drugs and Alternatives Anti TNF and other biological medications Possible Remicade Side Effect?

I was on Remicade for over a year the first time I was on it. Took a year and a half break and I'm back on it again.

My last infusion - in the evening, I was getting this incredible leg thing. It is like my legs are burning. I can pinpoint in my hip line where it starts and then it radiates down my legs. The next morning, I had a huge migraine and the day after that, it felt that the infusion didn't work as I was in the same amount of pain.

I had my infusion today, dosage up'd by 100mg. The burning leg situation is starting again. It's not a normal pain, because if I'm moving they don't bug me. So I googled RLS, and it may or may not be..then I googled RLS as a remicade side effect and there seems to be some people talking about it. So I thought I'd ask everyone here! If you are on Remicade or have been on it and following your infusion gotten the odd legs - I'd be curious.

I think my biggest fear is that this is going to turn into my last infusion cycle. RLS-type thing, Migraine and then back to how I was within about 36-48 hours after my infusion.

Anyone else?

Thanks!

Misty

Hi Misty,

Sorry your having issues..

I have had 8 infusions over a 6 month period so far and nothing like your talking about. I do have an issue of restless leg or more like restless body but it doesn't seem to fit any time frame like so many day before or after infusion so Im thinking its not the remicade.

What your describing seems like what my flares feel before my remicade.

Please remember that remicade or ANY drug will affect people differently so take your symptoms seriously. Hopefully some others will let you know if they have had issues like this on remicade.

Remicade has been a life saver for me and I would put up with just about anything to stay on it. I was basically bed ridden before remicade.

Hope you figure it out,

Lisa

Thanks Angel! That's why I'm asking, these two are the first times I'm ever experiencing this within about 7 hours post infusion and I've never had the symptoms before. The headache is starting in now. I will definitely be bringing this up with my doctor at my follow-up appointment. I ignored it last time as perhaps a fluke. But two times in a row, after an infusion has me curious.

Thanks for your experience! It def. helps!

MistyMae-
I just waanted to say hello and sorry to hear that you are having the leg pain. I can't help you out with any advice- just sending healing and pain free thoughts you way.

Anna