Hi Misty,

Sorry your having issues..

I have had 8 infusions over a 6 month period so far and nothing like your talking about. I do have an issue of restless leg or more like restless body but it doesn't seem to fit any time frame like so many day before or after infusion so Im thinking its not the remicade.

What your describing seems like what my flares feel before my remicade.

Please remember that remicade or ANY drug will affect people differently so take your symptoms seriously. Hopefully some others will let you know if they have had issues like this on remicade.

Remicade has been a life saver for me and I would put up with just about anything to stay on it. I was basically bed ridden before remicade.

Hope you figure it out,

Lisa

Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.