Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Hi, I'm new!

In the last few days of "lurking" I have learned so much, I am incredibly grateful!

A quick run down with me. I was dx'd with AS 5 years ago. My mom has it as well. I'm 28 and a newlywed! My last set of x-rays showed deformity in my spine in my upper back. I've taken MTX, SSZ, Enbrel and Currently Remicade. I took Remicade at 700mg then stopped for a year an a half due to moving and meeting up with a Rhuemie that well, made me feel like it was all in my head. I've started back on Remicade at only 400mg. When I was on it the first time, I honestly felt like I had my life back. I could do what 25 year olds do..:) I was a happy camper. Now, I'm not really getting much, if any, relief from it. I'm a PPD converter too so during my break in Remicade I had to do the 9 month treatment with no tnf's.

After doing some research on this site, I think that I am going to try the NSD to see if helps out. I really hope it does, but on the other hand I'm kind of sad about well..all of my favorite foods...I'll survive..;)

I've recently made the difficult decision, for me, to start cutting back at work because my work is getting the best part of me and my home life is suffering now. It's time to shift those priorities. I'm preparing to go to working part time on a regular basis.

Anyway - thank you for everything you guys post, I finally don't feel alone and am finally getting some information. I was getting a bit frustrated when well..I would google and bing or whatever AS and everything said how manageable it is...and how frustrated and depressed I'd felt...and then I came across a few member driven sites that had good information and woudln't you know it? They hurt like I do, every day is a struggle!

I'll stop rambling now, but suffice it to say, I'm a happy girl right now!

Misty

Hi there! Welcome to the site This place has been a life saver for me and my mom! We both have this demon Where in Az are you? I had my oldest son in Tucson @ Tucson Medical Center. Nasty place. If I would have known then... Anyways, I'm currently on Enbrel and Its ok but not all that I'm on a month lapse due to flus and sinus issues. ARRRGG! Frustrating!!! I have tried the NSD and well...I love food! I have hispanic in my genes! Bring on the food!! I'm 31 and have had this for 10+ yrs but known of the disease for about 2 yrs! Its hard but we deal with it with humor! PERIOD:-) that's what I've got! Take care and good luck with your treatment! Keep us updated

Hey..
Yeah... this place is the best! I'm a bit of a newb to AS and kick AS.. but it is the only place i feel very understood and supported (and can whinge a bit too!) Great crew on here! Welcome aboard!!
Rob

Hi,
I'm new, too, but this diet is doing great things!I'm so glad this site is here b/c my doc told me TNF or nothing... I was gonna get a cane-now I don't need it! It's hard at first but once you get used to it and make sure there's not ONE thing you don't know about making you think it's not working,it's great!!! Totally worth it! You couldn't force me to eat my fave donut now!!!Good luck!!
Shauna

Hi Misty,

And welcome!

Yes, this is the place where you are guaranteed to be understood!!! We know how frustrating and painful it can be.

All the best,

James

Welcome.

I have been on the NSD for a month, and I have my walking legs back. Good luck in your search for good health.

Lots of good people here in the know about AS.

John

It seems as though you can't live without the foods you love. That's how my son Danny felt. It took quite a lot of gentle nudging on my part to convince him to try the diet. 7 months have passed and you can't get him to eat anything with starch. Oh by the way, he is pain free.

Good luck to you. The support here is amazing. Just fire away your questions and concerns and you will get answers and support.

Laurie

Just wanted to say hi and welcome!!! I'll swing by when I have more time..

Angie

Glad we could help Misty! Anytime!!

Welcome Misty,
I am on the LSD with Carol Sinclairs book, and I do take Celebrex and I feel it has made a difference with the stiffness. I wish you the best.