Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Possibility for complete cure of AS in near future

Hi Inanna

I came to this website via success with gluten and corn free initially (over 20 years ago) - I was able to reach virtual remission within 1 year on no wheat, no corn, almost no refined sugar.

I am an old hand - 50 this year battling since age 17, my father is very badly affected by AS but copes with 2 hip replaced and fused ribs and back. He is just 71 but is still active and cycles from time to time.

Because of other research I have seen and discuss on other websites - I don't look at low starch as the end game - I believe that other proteins could be involved for some people.

I agree my analogy was not spot on but don't agree with the replacement either. It's chopping a few wires in the circuit board with a blind fold.

From other research in to other autoimmune diseases like Celiac, then RA, MS and AS - we know that these disease are not the body attacking us for no reason - but it is a misdirected attack against something else. Perhaps asymptomatic infection like Proteus Mirabilis in RA, Streptococcus in PsA.

..and that is just bacterial proteins, we also have other proteins citrullinated / deaminated (modified via enzyme reaction or via heating). There are so many other dietary valid angles to explore instead of low starch - and there are some related studies out there.

Research is even beginning to unpick why we make the misdirected attacks - nearly all of these point to overload of antigen through leaky gut, low zinc, low manganese, low vitamin D - estrogen overload.

The one area I am most interested in is commensal bacteria - using an analogy again - these other bacteria in the gut are 'witness to a crime' - so when an antigen is "arrested" by the immune system its presentation to the immune system is informed by these witnesses. Some of these are 'hang em and flog em' causing subsequent over-reaction (marking of B / T Cell).

In Rheumatoid Arthritis they believe that Prevotella Copri is one of these - and it likely that many proteins are 'presented' incorrectly to the immune system due to this imbalance.

If nobody has taken Ebringer's work to a definitive conclusion then that is criminal and reflect what I said about funding - there will be no profit for this cure.

Always gluten free - however, for the last 3 weeks I have been helping my wife with a diet called "Banting" - and with low carbs, little sugar I have to say my guts are incredible at the moment with a knock on effect to my inflammation (which wasn't too bad anyway).

Tonight I had my first rice for over 3 weeks.

Biologics for depression is madness - we know for sure that Gluten free, Casein free is being used with real benefit for many autistic children... and we know why it works too with reduction of LPS from gut bacteria (again) being key.

I suggest you read "Grain Brain" by Dr.Permlutter - the opioids in grains do more than contribute to depression and brain fog in many poeple.