Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; After a year(or more) on NSD

Yea. I mean. The thing is, the NSD diet seems to have varied amounts of success for everyone.

Like for some, they'll go on it and it's as if their problems are all gone. Or if they mess up, it'll be very noticable, etc.

For me, it certainly does help. But again, if I just downed a bowl of cereal or something, I would certainly get inflammation from it, but it wouldn't be like. Something that would put me in the ER or be tremendously painful. It'd probably hang around a 6 or maybe even a 7, something just annoying and that I don't want in my life. Almost certain that pain would increase if I kept eating that kind of stuff repeatedly. But the NSD keeps me at like a 1-4 range mostly, so I'm trying some other things to improve my gut health.

But on the topic of if NSD 'works or doesnt work" I really, really highly doubt from my reading and from experiences i've read from people with AS that there is anybody with AS who feels the same degree of pain if they just repeatedly down high levels of starch over a few months, vs being on a lower or no starch diet.

I just have never heard of that before. Even me when I originally first started getting AS symptoms I didn't want to do NSD because I was a picky eater. I ate amaranth(grain) as my only starch and I had a great summer eating that way with enzymes, but sure enough after 6 months or so of doing that, my AS symptoms increased, slowly but surely, and I was convinced that I needed to try a NSD. Over time I did that, and my symptoms improved again.


I've never heard of people with AS slamming pizza and donuts and feeling fine, but there are many people who over time either by diet or gut focused treatment, are able to eat low/moderate amounts of starch again.

I do fine AS wise on a diet that is high in starch - rice, oats, potatoes, sweet potatoes, beans. Much better than if I eat a lower starch higher meat/fat diet.

Another KickAS member also reported being able to thrive on a high starch diet - https://www.kickas.org/ubbthreads/ubbthreads.php?ubb=showflat&Number=516264#Post516264



Mark Jones had AS for over 20 years. After he switched to a starch-based 'no cholesterol' diet for heart disease he discovered that his AS was 'absolutely gone' - https://www.drmcdougall.com/health/education/health-science/stars/stars-video/mark-jones/

There is a published case report of clinical remission of an HLA B27-positive sacroiliitis on a vegan diet - https://www.ncbi.nlm.nih.gov/pubmed/11574747

Yea. I mean that stuffs great, everybodys different.

Ive heard of somebodys AS going away from going off animal proteins too. So who knows.

I just found that when I randomly tried stuff like that it only got me deeper in the AS hole and more frustrated as the weeks and months piled up. but everyones different.

Hi, jroc:

Jackie Le Tissier had AS and was vegetarian. Her "Food Combining for Vegetarians" is instructive using the Dr. Wm Hay method to avoid slowing the chyme; basically no fats/oils or proteins with starches. Eating a laxative enough diet can work for some people with AS, but the majority cannot get away with starches. Making a commitment to any diet and shedding the gut-damaging NSAIDs will allow good improvements.

I fooled myself early on, by adopting a vegetarian diet and had some early success with it, but, regrettably, my dietary choices and combinations were very AS-inciting.

HEALTH,
John

Jroc, I'm fascinated by your story. I'm like kj243 - the more starch I eat, the more pain creeps in. In fact, in the year before I found my way here I believe I made things much worse by my conscious effort to eat more vegetarian meals, mostly based around sweet potato and legumes.

Theoretically it makes sense to me that there could be a high starch path to success, since the goal is to prevent the body's reaction to the bad bacteria, rather than avoiding starch per se. Gut repair, efficient digestion of starch, no starch, crowding out bad bacteria, etc. are all different paths to the same thing.

I'm curious about what you did. Did you change your diet at all from when you were diagnosed? Are there foods you avoid? Any foods that cause symptoms? Is your diet especially low fat or low in animal protein?

Someone's poking the bear! Frederick 是一个熊孩子!!

Yes. At the time of diagnosis I was eating a vegetarian diet that was high in full fat dairy and low in fruit and vegetables. When I first started reading and learning about the connection of AS with diet and gut health I tried a vegetarian NSD but didn't have any improvement. When I experimented with cutting out dairy products I noticed a huge improvement. After around nine months of no dairy and no NSAIDs I had a blood test and my CRP and ESR were back in the normal range after CRP had previously been 79.


Yes. The main foods I avoid that have a track record of causing symptoms for me are dairy, red meat, eggs. I also have a reaction to some foods that are high in acrylamide (coffee, cocoa, potato chips, corn chips, caramel coloring, over roasted nuts), though it's possible that it's a different milliard reaction product or something else altogether that causes this.


Not particularly. I eat moderate amounts of chicken and fish and put olive oil in lots of things. I guess my diet could be considered low in saturated fat though compared to a typical western diet.