Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Good way to monitor how my symptoms fluctuate

Hi all, my name is Maurice, from the UK. I've had AS for 4-5 years.

In england, rheumatologists monitor progress by giving us BASDAI/BASFI questionnaires. I never knew what the scores meant, even though my treatments would change depending on my scores!

A small group of us raised some money and approached the doctors to develop a smartphone/tablet app to give over more control and knowledge to us.

Check out the free AS symptom tracker app! It uses the same assessment questions as researchers and rheumatologists, helps you understand your scores, helps you monitor how your symptoms change (in a graph ) and even allows you to send your scores to your doctor (instead of mailing back paper questionnaires).

Take control of your AS!

We developed it for our AS community and would love for everyone to benefit. Check it out guys!

www.goo.gl/lswmcr

All the best
Mau

Hi Mau,

Perhaps you could share a little about the privacy aspects of this app?

It does sound like quite a cool concept.

Thanks for sharing!

Thanks Mig

Users hold their data on their own devices, the app developers will never have access to this.

To backup their data, users can sign up with an email account, which is provided by Google Firebase, with industrial-level security. Again this will only be used to recover data if users accidentally delete their apps or change devices, and not for anything else.

This backup database does not hold personal or identifiable information except the users' account ID (their email).

Users can email their scores to their doctor from the app if they wish. The second release (if funded) will also give AS suffers in the UK an unintrusive option to participate in research using questionnaires. If it goes ahead, it will be regulated by research ethics committee code of conduct in the UK.

The top priority (according to the National AS society) in AS research at the moment is how to define a flare.

goo.gl/lswmcr
https://twitter.com/AnkspondTracker