Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Possibility for complete cure of AS in near future

Hello Guys ,

I would like to know if there is any possibility for complete cure of AS in near future and what about the ongoing researches being done on AS.

I was diagnosed at age of 27 and it came as a shock . I was in intense pain during the initial days resulting in restricted mobility in lower half of body w but then it subsided slowly with intake of Diclofenac Sodium within a months time . Took DS for three months and then stopped as there no pains. Then i didnt have any major flare for one year but then it struck again recently in my sacroilliac joint and feels like its growing in other joints day by day. I am wondering if we all be lucky having to see a complete cure or not in our life span.

Please reply ... thank you all
My prayer and thoughts with every one out there

HLA B27 Positive
AS diagnosed at 27years in 2015

I think a cure within the next 25 years is possible, but not that likely.

However, I'm pretty sure we will soon reach a point where the meds available will be able to stop disease progression or at least slow it enough to render the disease easily manageable.

People getting diagnosed today have a far greater chance of avoiding major problems than those who were diagnosed even 15 yeras ago.

WELCOME, stazzn:

Regret there is no cure for AS, but proper treatment can make it a nuisance instead of a career.

I believe that the difference is totally up to us; to our individual choices.

This is a capricious disease that comes and goes as it might please.
(sorry...it is Robert Burn's birthday)...

The old NSAID, Voltaren (diclofenac), damaged me in ways that greatly accelerated my AS, so I do not recommend any NSAID except for limited time usage. There are much better ways of controlling pain.

The direction of research into this disease will not produce anything resembling a cure, or even effective treatments within (y)our lifetime(s)--within the allopathic medical guilds.

I recommend fasting, monodiets, permanent dietary changes, supplementation, and exercise: AS can be overcome, but only through individual effort. Maybe this is because nothing really worth having is achieved without a serious struggle, lest it be taken for granted.

HEALTH,
John

That is a pretty bold statement especially since the biologics can be considered a pretty effective treatment for a lot of AS sufferers. Research is also refining our comprehension of the disease's mechanisms and we now understand a lot better what genes are involved in the inflammation and fusion processes.

Stating as a fact that "The direction of research into this disease will not produce anything resembling a cure, or even effective treatments within (y)our lifetime(s)" is very pessimistic.

AS may be controlled by Meds but side affects can be far worse that the AS ever could be -- After 1/2 century of AS - diet and exercise have been the only major relief without catastrophic side effects.

Hi John.

"AS can be overcome, but only through individual effort"

IT is completly true.

John monodiet is for change the microflora in our gut benefit?

Hello, annelore:

The fruit monodiet, especially apple diet, acts like a broom to help sweep away 'dross,' or impactions. So, yes it can set the groundwork for reimplanting the gut-friendly bacteria, and make our digestive processes more efficient.

HEALTH,
John

Thank you all for yours generous reply.
@ Dragon Slayer : I m sorry to know that Diclofenac didnt help you rather accelerated the progress of AS. I would like to know for how long you took the Diclofenac and What are the complications ? As i am presently on the same drug though at moment feels like helping me out with AS.

Now on basis of yours all recommendation, i have started full starch free diet along with my routine YOGA. Felt the effect from very first day.
Thanks all

I don't know about John but I took Diclofenac for ten years. Then I had a massive UTI bleed that almost took my life. after six more years I still have some episodes. Hematologist took me off all meds and any vitamins that could thin my blood. Now diet and exercise are the way I control pain. Some antibiotics about once or twice a year. That was my experience. I am also curious if DragonSlayer experience was similar.

Hello, stazzn:

Regret I took Voltaren for about five years in total. Almost immediately, I had an episode of knee edema, and soon developed ulcerations (lower tract) then stomach ulcers. This was the moment of clarity (or epiphany), when my doctor suggested I come in for a prescription--to counteract the previous prescription! Would I need yet a third and fourth?! So, I eventually got some 'carafate,' but did not bother because I wanted to get rid of the ulcer, first.

At that time, I did not know the connection between intestinal damage and AS and still maintained the worst diet for AS (vegetarian). Perhaps this combination (older NSAIDs--Relafin, Voltaren, Clinoril, etc) with diet made the acceleration much greater and certainly more obvious. I have a cluster of new symptoms that began with and because of the administration of the NSAIDs: TMJ pain, iritis, plantar fasciitis, kidney stones, and more severe periostitis.

The Voltaren was very effective at pain control otherwise; I could walk without too much bursitis pain from hips, and my shoulder bursitis seemed to relent a little--but the tradeoff was never worth it--within two years I began to have severe kyphosis, and it was only clear to me in retrospect just how bad the NSAIDs were. After learning about the germ connection with AS, thanks to Ebringer et al, and discussing the action of the NSAIDs with people who actually knew what was going on. The package inserts for Voltaren were constantly changing--first they suggested 5% stomach distress after 6 months, then it might have increased to 15% after 6 weeks! I do know that these drugs in combination with AS totally ragdolled me! I continued on the drug so long, because it helped with the pain, just to reiterate.

So that is my experience. I would not take the chance You are much luckier, and I am very happy to know You have begun the diet and had good initial results. I would add that taking EFAs and especially a lot of borage seed oil, can help decrease activity or get us out of a flare.

I got rid of my ulcers through fasting for 11 days and just a couple of months later Drs Marshall and Warren released the information about ulcers and H. pylori. Still for many years I had no idea of the bacterial connection to AS. Fasting also reduces AS symptoms of course; I used to fast to take down more severe flares.

HEALTH,
John