|
Forums33
Topics44,197
Posts519,915
Members14,168
| |
Most Online3,221
Oct 6th, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: May 2013
Posts: 47
Member
|
OP
Member
Joined: May 2013
Posts: 47 |
Hi Everybody,
My husband has been on the NSD for over a year now and while it has helped a lot he is still having a lot of trouble at times. He is considering worm therapy, but we are of course nervous and want to learn as much as we can. Has anyone tried worm therapy?
Husband diagnosed with AS in '92. Enbrel appx 2011- March 2013 when ER doctor temporarily terminated. Grateful to have finally found Kickas in April 2013 and NSD since May 2013. Since NSD no need to resume Enbrel. Enbrel only helped hip pain, did not touch chest pain. Since NSD, both hip and chest pain have improved. Still takes pain and other pills daily, but far fewer.
|
|
|
|
|
Joined: Jun 2012
Posts: 75
Apprentice_AS_Kicker
|
|
Apprentice_AS_Kicker
Joined: Jun 2012
Posts: 75 |
Hi MaryL, are you talking about Helminthic therapy? if so hook or whip? Does your husband have any form of IBS or allergies? Check out http://autoimmunetherapies.com/... they explain it well and also offer it via mail Ev
Evan
|
|
|
|
|
Joined: May 2013
Posts: 47
Member
|
|
OP
Member
Joined: May 2013
Posts: 47 |
Hi Ev,
Yes I believe that is the type of therapy we are interested in, but I don't know which worm (eek, hard to even contemplate). Thank you for the link, I will definitely check it out. Anyone else out there have experience with this? Even anecdotally through a friend?
Husband diagnosed with AS in '92. Enbrel appx 2011- March 2013 when ER doctor temporarily terminated. Grateful to have finally found Kickas in April 2013 and NSD since May 2013. Since NSD no need to resume Enbrel. Enbrel only helped hip pain, did not touch chest pain. Since NSD, both hip and chest pain have improved. Still takes pain and other pills daily, but far fewer.
|
|
|
|
|
Joined: Jun 2012
Posts: 75
Apprentice_AS_Kicker
|
|
Apprentice_AS_Kicker
Joined: Jun 2012
Posts: 75 |
Hook worm would prob be the one they suggest . I know two people with arthritis that have tried unfortunately no results..that being said it is still early in the game..can take longer than 6 months before seeing results. It is a low risk theropy ..worth a try. Best of luck
Evan
|
|
|
|
0 members (),
428
guests, and
230
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
