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Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
so my approved Enbrel script arrived from Medicare yesterday and I'm booked in to see the Dr on Friday to get a lesson in using the autoinjector... praying this will give me some relief 'cos I'm having a bad flare and reaching breaking point - I desperately need a good nights sleep!! Please keep your fingers crossed for me!
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Joined: Feb 2010
Posts: 589
Sergeant_AS_Kicker
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Sergeant_AS_Kicker
Joined: Feb 2010
Posts: 589 |
Good luck, really hope it goes well! 
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
I peferred the regular syringe over the autoinjector. The auto was painful, but I could inject it myself without pain (slower).
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Best wishes. I hope it helps you a lot.
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Good Luck! 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
I am on Enbrel and it has made a huge difference. Make sure the alcohol is dry and the Enbrel has warmed up. I even put the auto injector under my arm for a minute before I inject to make sure...clothes on of course. The little bit of pain is well worth the results. Good luck and fingers crossed for you. Let us know how it works for you.
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
I peferred the regular syringe over the autoinjector. The auto was painful, but I could inject it myself without pain (slower). sssshhhh, don't tell me that, I'm already freaking out - I am petrified of needles!!! I know I can't see it in the auto-injector, but I know it's there!!! 
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Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
I am on Enbrel and it has made a huge difference. Make sure the alcohol is dry and the Enbrel has warmed up. I even put the auto injector under my arm for a minute before I inject to make sure...clothes on of course. The little bit of pain is well worth the results. Good luck and fingers crossed for you. Let us know how it works for you. Thank you! I will make sure it has warmed up, heard it can really hurt if it's cold! eek!! Will report back later!
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Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
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OP
First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
Did not go well at all!! The Dr was running over an hour and a half late so lots of time for me to stress out - I was so determined to try and do it for myself, but since I was crying and hyperventilating, the Dr got my husband to do it. I tried to relax my leg but don't think I did very well, I found it quite painful and my thigh is achey now :-( I already don't want it next week!! I'm trying to book in with a hypnotherapist - it's time to deal with this ridiculous phobia once and for all *sigh*
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
I always put it in my stomach and found it not nearly as painful. I didn't pinch up the skin either. You will get used to it. Hang in there.
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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