Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Whining Section

Can we have a whining and complaining section? For flares like the one I'm in the past couple of days, I would just like somewhere to gripe. Haven't been watching my diet very carefully, and it's been over 100F & smokey in CO for two weeks. By watching my diet I mean I've eaten other than beige and light colored foods this week. Raspberries, red grapes, chili sauce, etc.. ~ all of which are too high in salicylates. It seems like once a flare starts I just give up and eat anything I want. It's like shooting myself in the foot, I know. But the percocet makes me not care. It's weird. It takes my rational brain and turns it into a WTH brain. Uff. Been going to bed with ice on my wrists, hands, feet, and ankles for two nights. Merghhh.... Plus which, my sister who is so sick with lupus, RA, shogren's, raynauds & trigeminal neuralgia was so upset yesterday because her friend died from multi-autoimmune disease at 38, and now she thinks she's going to die. Well of course, we all are going to die. Nobody gets out of this alive. But it's scaring her because our older sister died last summer. I told her to ask for a kadian or fentanyl patch. She's had all this for 35 years, and I think she shouldn't have to suffer so much. Phew! Ok. That feels better. So what do you all think about my new section idea?

count me in!

i'm sorry you're going through all of that.

my whining pales in comparison, still i feel pretty cranky.......
this summer has consisted of:

1 week of a flare (but not so bad cause i was on pred)

1-2 weeks of dealing with the rest of the flare on my own without pred

1 week of being really sick (some nasty "head cold" or something, but worse, or i'm getting wimpy as i get older......

1 week of finally getting back on track (got papers to do, so much else, want to go out and have some fun and enjoy the nice albeit hot weather.....)

on friday tweaked my SI joint so that i spent all weekend in the recliner on ice.....
feeling pretty bummed that my back muscles are so weakened now from the spasms, which i won't' complain too loudly about because they didn't make me scream.....still, this summer is going by so fast and i can't even enjoy it, and before i know it, it'll be fall and where will the summer have gone.....

ok, yeh, my achy back has me feeling just way too grumpy!
thanks for starting this thread!

i know i'm lucky that things aren't as bad as they used to be and i'll heal from this faster than i used to: between chiro, rheumy, flector patch, home ultrasound, tons of ice...all i had in the past in that list was the tons of ice.

its just that i hate this stupid SI joint so much some times! i mean all i did was step back off a step. instead of straight back, i think i stepped sideways, but who knows. i already have a whole list of activities i avoid because of my SI joint. now i can't even go into the closet to pull out some food, sheesh!

ok, do i feel better now? no!
i guess whining doesn't really work for me.....
think i'll go grab another ice pack!

EricaK,
I would love to join you and others like sue...in being winners!
Yes, I think it is all about winning. Remember it does not matter how you play the game; it is only WHO WINS the GAME!

Yep I want to be winner, with both of you!! All of you!!!!

What...??? not winning? it is whinnying? ...skuze??? it is whining? Gee pers, I do enough griping, why would I want to come here and listen to both of you???
What, cause I love you?? and I care what happens????...

yep, count me in.

Lola mae left the room the other night cuase I was whining!

My whine seems a bit stupid, but I've been waiting a good six months to see a rheumatologist and I still don't have any confidence that when I do finally see them (in another couple of weeks) that they will take me seriously and try and find a real reason for all this pain and disability, or will try and put together all of the jigsaw pieces.

Oy! Don't get me started!

I'm in the same smoky heat in Colorado, my kids don't call, they don't write, not one of them is a doctor yet...

Oh. Are we limited to just whining about AS?

Good. I can do that. Really well.

I've stayed sober for 31 years by making a "gratitude list" when I think things suck. There's always something to be grateful for.

Like: Thank G-d for air conditioning and the electricity to run it! So many out east don't have that.

Like: A couple weeks ago I took my two and a half year old grandson to his first pro-level NHRA drag race. He has two Hot Wheels funny cars and fell instantly in love with the body quaking noise and the spectacle. As 76 year old Top Alcohol Funny Car legend Vern Moats said to me as he put my tyke in the driver's seat of his (on blocks) 4000 hp car, "Hook 'em young and ya got 'em for life." Drag racing is still one of my first loves, even if my body can't take 5 g's any more. I've got a racing buddy.

like: I live in Lake Woebegone, Colorado, where nothing exciting ever happens. No wildfires. No severe weather. And I'm actually down with that. Boredom has it's place.

I could go on, but it ruins the spirit of the thing, doesn't it?

I'll be back next time I really need to whine though. Count on it.

Shalom,

John

There are times that I would love this section. Right now "I" am so tired of me that I don't even want to write it down. I get so tired of this stuff that I can only imagine that everyone else is tired of hearing me.

Just know I need some soft hugs right now.

Thanks family.
Possi

This whole board is a whining and complaining and griping and screaming board!!!!! It is also used for other things like when others are whining and complaining and griping and screaming board, the rest of get to help out because we have "been there, done that and will be back for more" so see it all evens out. It's an equal opportunity board!

a whinnying section! that sounds like a lot of fun! we used to do that when we were kids. we had horses and used to pretend we were horses too. haven't done that in years. that could be good therapy for whining, whinnying for whining! great idea

possi, we never grow tired of hearing from you, no matter what the topic, that's what we're here for.

but i do understand the getting tired of hearing myself. its so nice to "just forget about it", nice if we can find something to preoccupy our brains long enough to do just that. but sometimes its rather intrusive, poking its nose in when we're trying very hard to "just ignore"!

and watching the fires in colorado and seeing homes lost, yes, that makes me feel very sad for those people and very fortunate that i'm not in that situation.

that is one of the best ways to balance a whine, put it in perspective, but still, there are days........