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Oct 6th, 2025
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Beloved,
Brain X-ray shows extensive periventricular T2 hyperintensity, with finger like projections extending cephalad from the ....
Some of you have been telling me that I should have my head examined. Now we know why I am not normal!!!
From what I have read, high blood pressure, diabetes or MS are the causes. I could tell some things were changing. I was substituting words and prefexes for somthing else. My blood pressure was 210/130 last week at the doctor's office. Yes I am on stronger meds again.
So i have hemorages in my brain, AS, flaring muscles, facing 3 disk fusions, everying high should be low, everythinhg low is high in my blood work. My knees just literally throb all the time.
I am sure glad that there is nothing seriously wrong.
I am coming to the conclusion that this old carcass is not worth much more investment!
Thanks for reading, I know many of you are in the same shape, keep the faith, express love and always choose to forgive when possible!
to hell with the devil!
Lon
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I am coming to the conclusion that this old carcass is not worth much more investment! quite untrue!  just wanted to send huggs and good thoughts your way 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
That's right Lon, I agree with Sue. I hope they find out more on what's happening and what to do about it.
Timo 
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
AS stinks but we all are coping here in one way or another.
Take care of whatever is going inside of that ole noggin' of yours. As Sue said I think that ole carcass of yours is probably a doggone good investment.
I'm glad you are here at KickAS and for that alone your carcass has been a gift in my life
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Joined: Sep 2001
Posts: 849
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Sep 2001
Posts: 849 |
Keep Kicking Lon.
God bless and heal you.
Yoly
Bent but not broken.
Yoly
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Beloved,
Brain X-ray shows extensive periventricular T2 hyperintensity, with finger like projections extending cephalad from the ....
Some of you have been telling me that I should have my head examined. Now we know why I am not normal!!!
Well, Lon, I guess this may be a factor in your "adventures". If you respond well to treatment, you won't have as many new chapters to add. Are you getting set up with physical therapy? I'm glad you got your head examined. I won't hold out any hope on you getting normal, though. And that's okay!
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Apr 2002
Posts: 1,358
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Apr 2002
Posts: 1,358 |
Brother Lon keep up the good fight.
Bradford
To the world you may be one person,but,to one person you may be the world.
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Oh Lon, my dear friend, your carcass is the best investment. Hang tough as usual! That blood pressure is totally out of control and very dangerous. I hope the stronger meds are working. I worry about you
Cindy
" That which does not kill me only makes me stronger"
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Joined: Sep 2001
Posts: 967
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2001
Posts: 967 |
A liitle more brain to work with. Good luck, How was your to to Washington. I did manage to get to devels tower. No longer on my bucket list. Good luck with dealing with the extra brain capacity. Body has never been worth much just the sole.
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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OP
Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Friends,
I have an appointment the 8th..
It has dawned on me that I have fallen nearly every day now for weeks. Soooos
Love ya all. Thanks for being here for me through the years.
Remind Lin, that when my bulb gets dim, I have done a lot of live'n generally looked for the best and found so much good in so many people.
I am afraid that I will not not be able to communicate how much pain I am in, during my last years on this earth. Until then, may you all be richly blessed and find true happiness.
L.
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