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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jan 2006
Posts: 111
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jan 2006
Posts: 111 |
Hi Charlie, are you seeing an Uveitis/Iritis specialist or "just" an regular opthamologist? Here is a link that talks about the different forms of Iritis (wheather it is in the front, middle or back of the eye): http://www.oliviasvision.org/uveitis-resources/uveitis-glossary/Do you know what type of Iritis you have, what part of the eye is inflammed? Because I went to see my doctor one day too late with my last, bad flare, the inflammation spread from the front to the middle of the eye and also effected the liquid, causing the milky eyesight. I had to take steroid tablets as the drops didn't work well enough. It was no fun, I had side effects such as aggressive behaviour, couldn't sleep and put on weight. I had to take the tablets for about 2 months. In addition I was very strict with my diet: no suger, no alcohol, no nitrates, no nightshades, no red meat and I took tons of supplements: Vitamin E, fishoil, calcium, Vit D, Meriva (a curcumin extract), Multivitamin, Asthaxantin What helped, I don't know, however the inflammation calmed down and the liquid cleared up, however, because of the amount of steriod drops I had to use, my cateract that was already there got worse. Is this info helpfule? If not, get back to me or send me a PN. All the best to you, I know very well how scary this can be! Christina
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Joined: Feb 2010
Posts: 1,046
Iron_AS_Kicker
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Iron_AS_Kicker
Joined: Feb 2010
Posts: 1,046 |
I don't know what I'll do next. Strict NSD (no dairy, no fruit, no sugar) is not something I see myself doing for the rest of my life. Because I always react with Iritis I can't even really work out what triggers flares. I cannot have any more Iritis flares, my right eye has already suffered and my Iritis has a tenedency to jump, so I'm really scared my left eye will suffering too at some point.
I have hardly any other symptoms, just the eyes (I used to have very bad flares all over, but that stopped when I started the diet about 10 yrs agao).
Definitely can sympathize, as a computer programmer by trade. Have to admit graphic design is even more dependent on eyesight, since there are some programmers who get by with Braille terminals (would be hard to learn at my age though!) I got diagnosed with AS after having my first serious bout with iritis. It took about a year for the vision damage to clear up. Never want that to happen again, which has inspired me to be very strict with diet after realizing that diet was one of the root causes. However, I did find a way to prevent full-blown iritis while experimenting with foods: after eating something questionable, watch for very early warning signs, waking up with an eye that feels irritated as if I'd been around smoke or something, or a bit of redness. As soon as that happens, take one or two Aleve, and be very strict with diet, possibly fast for one day (after eating something safe with the Aleve). Would not recommend Aleve (over-the-counter naproxyn) for daily use, but for this purpose it has worked great for me. Maybe this is something to try after your current bout is definitely over. Assuming you don't have terrible allergies or anything that would mask the initial slight irritation stage. Actually, I used to blame frequent morning eye irritation on allergies (or lack of sleep) until starting on LSD/NSD diet... have noticed now that my eyes are fine if I eat/drink only things on my "safe" list. Also, as far as no-sugar and no-fruits go -- Kiwi recommends green grapes, and I eat them regularly; when out of season at least there are still thompson raisins. Raisins work out well in a daily bowl of hot flaxseed cereal. No eye problems at all. If dairy gives you problems, it could be either the lactose (slowly digested, feeds the klebsiella) or a food allergy to casein and/or whey -- actually all 3 bother me. So I eat butter and homemade lactose-free yogurt. Learned how to do the latter from another KA member who makes yogurt from goat milk.
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Joined: Jan 2006
Posts: 111
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jan 2006
Posts: 111 |
Hi, thanks for your input. Of course I'll stick to the diet as it keeps my AS in check. I'm just not sure what triggers flares and what not. Especially as it is not always the same. I know I react to coconut and flaxseed. I might be reacting to too much caramel (like this time), but I've been having Magnum ice cream with caramel before without any issues. I had processed sausages without issues, same with cured ham, cured sausages, most veggies and fruit ( I stay away from Bananas, Mangos, cooked carrots, root veggies and similar).
I made goats cheese yoghurt and I reacted to it, I think I'm ok with dairy, I try not to eat processed fruit yoghurt. Although I had a few and it was ok.
I guess I was getting too careless with my diet and the caramel cookies might have pushed me over the top. So it's back to basics again and trying to stay away from my personal fringe foods.
I'll be seeing a homeopath tomorrow who is also a psychotherapist and also trained as a regular doctor. She is very smart (happens to be an old friend of my mum) and works a lot with poeple with HIV and cancer. I want to look at antibiotics, LDN and whatever else is out there to get this under control before moving on to the heavy drugs.
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Joined: Jul 2005
Posts: 324
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Jul 2005
Posts: 324 |
I hope you are getting better soon. Recently I am trying to eat Sashimi everyday and it helps my inflammation on my joints but I am not sure if it is helpful to my iritis yet.
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