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Joined: May 2010
Posts: 1,279
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Copper_AS_Kicker
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anyone who has taken or is currently taking antibiotics for AS please share your progress good or bad! what are you taking? for how long? any specific protocol? how are you doing? please tell us :]

Last edited by sunnypower; 06/17/10 12:13 AM.

AS & Fibro. NSD + no sugar
Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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not taking but a number of people talk about it, wish i could remember who, but if you go to the NSD part of the forum, or other parts of the treatments part of the forum. maybe someone else will see this and jump in.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: May 2010
Posts: 1,279
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Copper_AS_Kicker
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thanks sue should i repeat thread or have it moved?


AS & Fibro. NSD + no sugar
Joined: Sep 2001
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AS Czar
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AS Czar
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Hi, sunnypower:

There is no "Ebringer protocol."

I have my own protocol for AS that works as well now as for previous 11 years. In this time I have had very few classic AS symptoms, but my AS was already so advanced that I am cursed with severe osteoporosis and sequelae related to this.

Primary to my protocol is the incorporation of NSD, to assure no resistive colonies have developed (or selected out). I have recently experimented with Tanalbit and had mixed results so far.

There is absolutely no doubt in my own mind that AS should be treated using antibiotics, however, each person is different and complicating factors like candidiasis can obfuscate results.

If You are interested in my AP for AS, You are welcome to request a copy via email.

Good Luck with it,
John

Joined: Jan 2008
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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sorry i didn't communicate my thoughs clearly, i had simply meant you could look there to see what others had said. though bringing it up there too an even better idea. plus i see john answered you, that's good as well. smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: May 2010
Posts: 1,279
S
Copper_AS_Kicker
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Copper_AS_Kicker
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Joined: May 2010
Posts: 1,279
yes im now aware of the 'no ebringer protocol' ..i must have misunderstood something somewhere.
so you came up with a plan of your own? did you do this with a doctor or just winged it and it worked? no criticism...just curious.

yes would like the ap but prefer not to advertise my email in the forum. thanks

ill be in touch

Last edited by sunnypower; 06/17/10 12:00 AM.

AS & Fibro. NSD + no sugar
Joined: May 2010
Posts: 1,279
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Copper_AS_Kicker
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sue im so stupid... i posted another thread titled the same in NSD section. lmaoooo sometimes i just dont get it :] thanks for putting up with me.


AS & Fibro. NSD + no sugar
Joined: Jan 2008
Posts: 21,346
Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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no no, you're fine! smile

this place is like a big maze sometimes smile




sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
J
jet
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jet
Unregistered
J
Originally Posted By: sunnypower
yes would like the ap but prefer not to advertise my email in the forum.
you can use the Private Message function to communicate privately with other members.

Last edited by jet; 06/17/10 12:23 AM.
Joined: May 2010
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Copper_AS_Kicker
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Copper_AS_Kicker
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thanks jet :] but i believe hes not accepting PMs. ill try to figure it out.


AS & Fibro. NSD + no sugar
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