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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Molly, thanks for the hugs. The implant? Won't work in my case. I'll call him tomorrow. One good thing about him is he calls me and talks to me, not his nurse. He's a great surgeon, very blunt when and honest, at the same time compasionate.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Chris, how is your back doing? The Prednisone doesn't seem to be helping anymore. Other than increasing my pain meds, I'm about out of options.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hey Sue, I tried Neurotin and Lyrica and same thing happened to me, didn't help the pain and gave me migraines.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sorry to hear that  hope someone has better ideas, hate when all the simple ideas just don't work.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
I'm still hanging in there. We had a little sun a while ago so I took a little walk to blow the stick off..LOL I don't do this sitting around the house thing very well. Even on bad days I have to move. But I'm gonna stick to the plan.
So, did you have the surgery I just had for your leg pain?? I hope that this is just a temporary set back. I know they usually implant the stims like I have higher in the back to cover the entire back, mine will only reach to about my knees, but nothing says they couldn't place it lower to hit the nerves feeding the legs. Mine has been on for nearly 3 years now. and still helps my back pain.
Keep Kickin'AS Chris 
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Oh Cindy, I am so sorry. I do understand the unrelenting pain but all of the surgeries you have gone through is just too much. I can't wrap my brain around all you have gone through.
I will pray for you Cindy that you get some relief.
Call if you want to talk.
Love you.
Possi
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Apr 2009
Posts: 726 Likes: 7
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Apr 2009
Posts: 726 Likes: 7 |
I hope you find some answers. Sometimes it seems like you are just getting by and the man upstairs reaches out and taps you up aside your life and sets you back on your heels. My Grandfather told me once that you will never get more put on your plate than you can handle, sometimes I wish I had a smaller plate. Things have a way of working out, for your sake I hope it's soon.
ETTE.
Darrel.
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hola Cindy,
Sorry to read this, reading your posts over the years know you have been through a lot. Pray the pain can subside for you and find some answers.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Oh Cindy, I'm so sorry you're having to deal with this, please know that I'm here for you...you're in my thoughts and prayers, my dear friend!!  
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Sweetie, I'm so sorry to hear this. Good grief, it just seems so unfair after all you've been through. How is it today? Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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