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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Well just a vent here. Looks like the great outcome of my back surgery was short lived. Have been going down hill for the last month. All the leg pain is back and then some. Had to grab my emergency stash of Prednisone the other day. I really don't know what to do at this point. My Neurosurgeon, at my last appointment, said there was too much damage in my entire spine to expect to ever be free of this struggle. I came to terms with that and even the "tooth ache" leg pain that was there before this last development and surgery. I can't deal with this intense leg pain that even my pain meds don't work. Not quite sure what to do right now, just needed to talk to someone.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Oh Cindy, that's really crappy. So sorry to hear that. Does prednisone relieve it at all? I'm assuming it does to some degree because you're relying on it.
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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kevin_A
Unregistered
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kevin_A
Unregistered
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I'm very sorry all your pain has returned and is making you feel so low.Its such a big let down when you're hoping things are better.Can your Doctor not give you some different pain medication.
Kevin
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Joined: Nov 2008
Posts: 1,970
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Nov 2008
Posts: 1,970 |
Cindy
Sorry to hear you are in more pain. I hope you get some relief soon.
Do you have another doctor appointment scheduled?
Hang in there and get some rest if you can
I can not defeat you but I will not let you win
Jeff
Degenrative disc disease 2005
AS 2008 HLA-B27-
Fibromyalgia 2010
Disability 2012
Back to work part time 2013
Enbrel, Cymbalta,Oxycodone, blah blah blah blah
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Cindy - What a stinker. Any chance of having an implant like Chris has got? May help some? To be downing drugs like no tomorrow aint any part of an answer, especially if they aint helping any! But IF poss to put in an implant... Darn sad to read this from you, and after everything you have been through. Shoot gal. Love an (((HUGS)))  don't make the pain any better, at all, but know in my strong thoughts and prayers. Molly C
MollyC1i - Riding OutAS
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Joined: Sep 2001
Posts: 2,762
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Joined: Sep 2001
Posts: 2,762 |
Sorry to hear that you are having new pain, Cindy. If the pred helps maybe its just a quick flare of imflammation. I hope..
I know how disheartening it feels to go through a procedure and not have the outcome that you thoght you'd have.
Hang in there Cindy, we're all behind you.
Keep Kickin'AS Chris 
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
sorry to hear this.
not sure what drugs you have tried for the leg pain. wondering if you've tried drugs that are designed for nerve pain, not that that is the cause, but may help? things like neurontin or lyrica? just a thought. i tried lyrica for my pain, all it really did was give me migraines.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hi Wendy, The Prednisone? Before my surgery I was on it more than not. I was soooo glad to get rid of the new leg pain and not have to run for Pred. I've only been back on it for 3 days but it's not working yet. I used to get some relief after 2 days.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Thanks Kevin, Part of the whole pain med thing is my fault. I don't want an increase. I've been on this pain med regieme for 5 years and will be on it for ever. I don't want to increase unless forced to then my body will become too accustomed to it. Without this new leg pain, I can get away with the doses I currently have.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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OP
Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Jeff, thanks, I don't have an appointment with the Neurosurgeon. Last time I saw him, post op, I was doing pretty good. He told me to call him if there were any changes. I guess I'll have to tomorrow.
Cindy
" That which does not kill me only makes me stronger"
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