Kickas.org Forums Treatments, Drugs and Alternatives Alternatives and ALCHEMISTS Another Mine Radon Report from Montana

sorry to hear that megan,
hopefully the tides will turn soon.

sue

Hang in there, Megan. Best wishes and thank you so much for the mine report and regular updates.
N

nm

well if flaring is a sign of a good result like many have reported than you should be running around pain free pretty soon here's hoping that is the end result

I have to say, I wasn't quite prepared for this kind of a flare - everything is in overdrive. I'm not sure what I was thinking. Right now, I don't have a GP (not one who will help me out anyways), and my rheumy is out of the country without a replacement until mid-Aug, so I'm going to be up the creek in a matter of days when it comes to painkillers. Had I known it was going to be a big flare, I would have better prepared.
Stress is not helping right now at all - I'm supposed to photograph a wedding (that will likely occur in 35C heat) in 10 days and I can't stand for more than 30 seconds at a time, or walk more than a couple of steps. And that's on enbrel, prednisone, t3s, and celebrex. I need something stronger, but of course, walk-in clinics won't prescribe anything stronger than that. Not sure what to do. Right now it's hard enough just to carry on a conversation - the t3s really mess me up.
There is definitely room for improvement in 10 days though. I'm hoping/expecting for at least a partial improvement by then.
Glen did manage to take me for lunch and a movie yesterday. Good to get out of the house. We saw "The Love Guru" - totally stupid funny and just what I needed! Or maybe it was just the overabundance of t3s in my system that made it seem funny.

Megan
I applaud your determination to fight this "bleep" disease anyway you can. I would love to go to the radon mine if I had the money to stay in a hotel for that long.
Are you allowed to take a book to read or anything else to keep you keep busy while in the mine?

I hope you are doing well. keep us updated on how you are. i have read a lot of posts about your experience. you mentioned some sending you emails that were against what you are doing. I understand their concern but this is your choice not thiers. I dont know what they said in the emails but it sounds like you handled it very well by telling them to stop. You are a young and very cute young lady. Some may see you as naieve. Someone as young and cute as you cant have a brain.... right? UGH!!!! LOL

Well anyway stay stong and keep us posted.

have a wonderful day
Your Friend
Raquel

Well.... I post this with a smile! We have improvement!!! Still a long way to go, but at least there is very slight improvement.

Yesterday I woke up, and didn't feel the need to impail myself on a sharp object to distract myself from the pain. Actually, I didn't take any celebrex or T3s yesterday, and even managed to go for a short walk. This actually feels very similar to when enbrel, my once-miracle drug, first started kicking in. (Incidentally, it took about the same amount of time to first give inklings that it was going to work.)

I'm still on double dose enbrel (but seems to have completely worn off anyway, only continuing it at request of my rheumy) and 25mg/day prednisone. But cutting back on the celebrex and T3s is sure making my tummy feel better. I'm hoping to start decreasing prednisone, very slowly, starting soon. The pain is still there, still mostly in my feet, spine, SIs, and mid-back rib area, but it's improved greatly since last week.

I wasn't going to post this... sorry guys, you may not want to hear about it, but here goes anyways. I had a biopsy confirmed fibroadenoma (benign) tumor in my breast (fairly common in young women), which I discovered over a year ago. It continued to grow, became very painful, and before the Montana trip it was really freaking me out, as it was becoming quite large (grew to two lumps, each about the size of a golf ball perhaps), and very painful right against my rib cage. During my mine stay, it was unbelievably painful, and it was the ribs right beneath that were the most painful part of my flare. I wouldn't hesitate to say my ribs were excruciating at times; just breathing was a mission. Ok you get the point. Fast forward to today, and the tumor has shrunk to the size of a pea, and my ribs right under have decided to almost stop flaring. I have no doubt that the tumor and rib pain was linked. Since this tumor-shrinking business started, I've been researching low dose radiation for tumors and other problems, and it seems that again, radon therapy works very well for this type of thing - or anything to do with immune modulation. A nice, unexpected bonus! I really had no idea this could happen especially in less than 2 weeks, and I am a very skeptical person, but THIS, I cannot deny. Amazing.

My mood is much improved, much to Glen's relief, so there is no longer any danger of Glen throwing me down a mineshaft. Kidding! That man has been through the wringer taking care of me and my moodiness lately. He is one good, good man, and I cannot thank him enough for everything he's done for me, especially in the past few weeks. Also huge thanks to everyone from KickAS who has been encouraging me to be patient... not exactly my strong point! I love this place!

Glad to hear the flare may be breaking.... Keeping fingers crossed for ya

WOW Megan!!! That is truly amazing and an absolute joy to read that you've received such an incredible benefit in shrinking down such a painful tumour. That alone must be a remarkable blessing, worth all those hours spent alone, chilly and far from home.

Very exciting to read you are experiencing some improvement in your AS as well... yippeee!

Huge hugs and best wishes that this trend will continue!!
mig

megan,

this is all very good news.

sue