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Joined: Apr 2008
Posts: 43
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Joined: Apr 2008
Posts: 43 |
I was wondering if anyone has any insight or related experience to persistent facial acne during a flare.
It doesn't seem to matter what the dermatologist gives me and the extent of my facial maintenance regime. Nothing is working.
Has anyone experienced this or read anything about a connection to acne and AS?
Thanks.
"My imperfections and failures are as much a blessing from God as my successes and my talents and I lay them both at his feet."
-Mahatma Gandhi
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Sera, when I googled 'Ankylosing Spondylitis and acne' a few things came up, but they were about an HLA-B27 negative young man and it was considered rare. Can't help you otherwise.
However, it would appear from what you say that it might be a part of your flare process. I'm wondering what your rheumatologist might say about it.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Anonymous
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If you have AS and HLA-B27 postive or negative. There is a conditon called Sapho Syndrome. It maily impacts clavicle and sternum and hardly SI joints. Here is a link to a website that describe this condition. http://www.orpha.net/data/patho/GB/uk-sapho.pdfDoctors in Canada and US are not really of aware of this condition. HTH, Ali
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Ali,
that is interesting. i had never heard of it and i bet most others haven't as well, so it will be good to have it here for others to see.
sue
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2006
Posts: 1,034
Iron_AS_Kicker
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Iron_AS_Kicker
Joined: Sep 2006
Posts: 1,034 |
Have you tried oregano oil? You can purchase a dropper bottle of oregano oil that is already diluted in a base of olive oil in a health food store. It is very strong taste, so I use empty capsules and fill with the oil to take orally.
You can also combine it with coconut oil, and apply it directly to your skin. Use only 1 drop oregano oil with about 1/2 teaspoon of coconut oil. Rub it in your hands to combine and apply to skin.
You can also make a toner with hydrogen peroxide. Mix 50% hydrogen peroxide and 50% distilled water in a bottle. Apply this to your skin with a cotton ball. When it is dry, apply the coconut oil.
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Joined: Mar 2002
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Titanium_AS_Kicker
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Titanium_AS_Kicker
Joined: Mar 2002
Posts: 5,202 Likes: 5 |
Does it disappear with the flare?
Rosasia perhaps? am sure spelling is wrong so please forgive.
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Anonymous
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Anonymous
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That's one of DX that I have on top of Inflamatory Spine and Microscopic colitis.
Antibotics have been my mainstay for years. I notice that when I have acne under control most of my joint issues disappears.
NSD has been a great help for me in controlling my condition with antibotics.
HTH every1.
Ali
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Joined: Apr 2008
Posts: 43
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OP
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Quote:
Hi Sera, when I googled 'Ankylosing Spondylitis and acne' a few things came up, but they were about an HLA-B27 negative young man and it was considered rare. Can't help you otherwise.
However, it would appear from what you say that it might be a part of your flare process. I'm wondering what your rheumatologist might say about it.
Hugs,
Your so sweet for actually looking that up. I read the exact article. I'm HLA b-27 negative too. I wonder if there's any kind of connection.
Hugs to you!!
"My imperfections and failures are as much a blessing from God as my successes and my talents and I lay them both at his feet."
-Mahatma Gandhi
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Joined: Apr 2008
Posts: 43
Member
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OP
Member
Joined: Apr 2008
Posts: 43 |
Quote:
If you have AS and HLA-B27 postive or negative. There is a conditon called Sapho Syndrome. It maily impacts clavicle and sternum and hardly SI joints.
Here is a link to a website that describe this condition.
http://www.orpha.net/data/patho/GB/uk-sapho.pdf
Doctors in Canada and US are not really of aware of this condition.
HTH,
Ali
Hi Ali,
That is so interesting. Can you still have SAPHO syndrome if you only posess one of the symptoms?
"My imperfections and failures are as much a blessing from God as my successes and my talents and I lay them both at his feet."
-Mahatma Gandhi
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Joined: Apr 2008
Posts: 43
Member
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OP
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Joined: Apr 2008
Posts: 43 |
Quote:
Have you tried oregano oil?
You can also combine it with coconut oil... Rub it in your hands to combine and apply to skin..
Thanks alot for the advice. I was wondering, I have an olive complexion which can get oily, wouldn't the oregano and coconut oil cause it to get oilier?
Thanks, Sera.
"My imperfections and failures are as much a blessing from God as my successes and my talents and I lay them both at his feet."
-Mahatma Gandhi
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