Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Wow, what a week

So I was in the hospital for 5 days and really have no idea why. THe doc's say it was a mess up on my medications but I'm not sure if thats the case. I've always been very very careful with my meds, keep an eye on what I'm taking, when, and how much but something happened that caused me to start talking wierd, forget things and various other ailments along with the second knee dislocation. I decided to check myself in so that they could monitor my vital signs and I have had a massive change in meds and dosages. Some I quit, some are new. I see the doc for a check up tomorrow. I had been doing so well too and it's so [**BLEEP**] frustrating now to know that all that hard work Ive been doing is pretrty much out the window and I've had to readjust to being gimpy again. I decided to go for the crutches instead of a cane because along with everything else, my balance is off whack.

I also feel like I had a near death or spirtiual vision quest of some sort. If you ask my husband though, he'll just tell you I went crazy.

I even had to spend my birthday in the hospital. That was the toughest thing of them all. I am hoping and praying that I can make it up to my hubby on valentine's day. I felt likie such a failure when I had to stay in for one more day and that one more day being my birthday. Poor guy, I'm surprised he hasn't divorced me yet.

Now I'm crying. Thats another of the problems. Im having insane bouts of crying and out of control anxiety. If I were pregnant then it might be ok, but so far, I'm not. I just don't understand why things can go so right for so long and then poof, the health goes back out the window.

There are some silver linings. I qualified for medical leave for my job and I can have as much time as I need (Up to a certain point) to heal and I will be going back part time before the maximum allowed days I can miss. I'm staying in touch with my job and my head boss daily (sometimes thrice) and I'm finally starting to get my memory back. I won't lose all my pay while I battle this latest bout of auto immune system issues. (can we just call what we all have AISI? autoimmune system issues with an emphasis on A.S?)

It seems as though I've magically gone from being hypothyroid and on a HUGE dose of synthetic hormone to being hyperthyroid and now I'm not taking any. So either someone messed up my meds, I took too many, or my thyroid has magically started to produce hormones again. I was treated with radioactive iodine when first diagnoses with Graves Disease and they told me that it was completely inactive. Are there any cases of a thyroid suddenly starting to emit hormones again? Maybe some solar flare restarted it? LOL

I imagine the doc will tell me some sort of answer on this one. This has me completely stymied on whats going on inside my body and I normally am very much aware of it. Add the anxiety and stress and loud noises of a remodel in the bathroom and you've got one crazy loopy marnie. I also can't even relax in the bathroom since we don't have a toilet or completely bathtub yet. That will be coming soon enough. When it's all done I'll show you the before and after pics. I've taken one bath so far and it was heaven. I can't wait until it's completely done which should be this weekend.

I woke up out of a deep sleep because I felt like I was going to throw up and that required a trip outside to the porta potty. Needless to say, I wish I could go back to sleep but I've missed that 'window' and Im stuck aimlessly wandering the internet.

Hugs and I hope you all are having better health days. Thankfully I still have my positive attitude and so I share that with you in hopes it will help you get through your bad days.

*hugs and peanut m and m's*

Marn

Marn - That is horrible. What a strange turn up - TG you got yourself into hospital and so back on the road. Sounds like you have some good doctors taking care of you, and a super supportive husband, excellent.

Sure was not too happy to spend your birthday in hospital, but as it was getting better, then what better birthday present?

Hope the bathroom gets sorted soonest - luxuriating in a hot bath is pure bliss - better than going shopping You take care gal and have a *wonderful* Feb 14.

Molly

Hey Marn,
I'm sorry to hear about your recent hospitalization! I hope they get everything straightened out SOON and you can get rid of those crutches! Keep smiling!

Sarah

Marnie...
here in Charleston with the sun breaking thru pretty this AM I'm wishing, hoping and praying all goes better for you ASAP!
Thinking of you alot because your last week sounds much like my last weekend... but this week is rolling smoother with my Remicade infusion in and going to a deep tissue massage therapist for my 1st massage yesterday... Can we both soon I hope (together) sigh out loud AHHHHHH!
Russell

Oh Marnie, what a nightmare. I'm so sorry to hear you've had to go through this and am sending all the white light and love I can. Hopefully, they'll get your meds worked out sooner rather than later.

Many hugs,

Hi Marnie,
Thank goodness you got yourself to the hospital. Sorry you had to spend your birthday there though. I wanted to tell you that several years ago I went kind of 'crazy'...talking to myself, crying, dizzy etc etc....finally the doc figured out my thyroid was completely out of whack. I had no idea and was very surprised at what it can do to you. I was put on a very large dose of Synthroid. I do know also if you are taking too much, as in your case, it can cause 'craziness' also. My doc said my thyroid was not working at all and that it never would again. Take care of yourself and try to relax now that you have time off from work. I hope your bathroom gets done this weekend so you can have some peace.
Sending you big hugs and all my best wishes,
peanut m & m's sound soooo yummy

Sherri

Hi Marnie,

Sorry to hear you've had such a rough time of it. I do want to say "Happy Belated Birthday". Maybe you and your hubby can go out and celebrate soon. Heck, just getting out of the hospital is worth celebrating.
I hope you feel much better soon and are able to take a nice long hot bath. Remodels alone are enough to make one feel crazy.
Take care Wanda