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Oct 6th, 2025
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Joined: Sep 2002
Posts: 12
New_Member
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OP
New_Member
Joined: Sep 2002
Posts: 12 |
I have not posted here for a long time. When friends and family went public, I stopped. Did not want to put my Husband through my whining.
He has now stopped checking in also. I just want to CRY AND WHINE!
I am in the USA so don't know if this applies elsewhere. WHY DON'T THEY SEE HIM AS DISABLED! My beautiful other half loves life has to fight with social services. He is 45 and can hardly walk, yet the people who deal with him say, you need to get employment. As soon as he gets in the door the people say Oh sorry position filled.
The new low for us is I have now had to leave my job because the kids are off for the summer(from school) and he can not do for them. My oldest tries SO HARD(11) to help dad but where do you draw the line, after all they are kids.
I have now had to apply for food stamps. And this is killing us.
Sorry just needed a shoulder to cry on, and sorry to bother you all...Sue
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Joined: Feb 2002
Posts: 2,222
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2002
Posts: 2,222 |
Hi Sue,
I wanted you to know that anytime you need a shoulder to cry on or an ear to listen we are here for you. This is a difficult disease to deal with I can't even begin to imagine how you are feeling. I am on the other side of the fence. Where do we draw the line? That is not a simple question to answer, but it is one we all ask. Hang in there.
Cara
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Joined: Apr 2005
Posts: 1,167
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Apr 2005
Posts: 1,167 |
It's not a bother Sue, we need each other's support...  and prayers...
Blessings, Sigrid
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Joined: Apr 2002
Posts: 3,739
SENSational_AS_Kicker
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SENSational_AS_Kicker
Joined: Apr 2002
Posts: 3,739 |
If you want to post privately ( where your other half cannot read your posts ), you can join the womens forum. Men are not allowed in there.
I hope things look up for you soon.
Maggie
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hi Star, Just remember we are all in the same boat to some extent so worse some better. I know that it doesnt help, but just to know that others ARE going thru the same thing as you and there is a place that you can come and vent, cry, gripe and even whine and someone will listen to you. I dont have any advice, I cant imagine what it would be like for the provider to be down and not know what is going to happen or what the future holds. Just do the best you can to help him, be a support to him, strive to keep your family together, and stay as upbeat as you can and just take it one day at a time. If you need to talk I am here feel free to pm me... Lisa 
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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
Hi
I remember when you were posting before.
My son has AS, not I....if you would like to PM me, please feel free to...I know what it is like watching someone you love suffer so much. I have been there.
Lori
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."   
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Joined: Mar 2004
Posts: 476
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Mar 2004
Posts: 476 |
Hi Sue, Sorry things are so tough for you right now, I am
walking with you. as my son has AS, I do not, and I know
how hard it is to watch them suffer. So much we have to accept.
My son had a great Dr. and he helped him get on disability
Social Security. He is in pain 24-7. Both hips have been
replaced those at 42. Neck and back fused, impossible for
him to continue to work.
Hope help is around the corner for you and yours.
Take Care,
Maxine
"Mike's Mom"
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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
Hi Maxine
How are you and Mike doing? Seems like it has been for ever since I have seen either one of you around...
It is good to see you, and I hope that you guys are as well as can be.
Lori
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Sue, 'tis no bother at all. We all need an ear sometimes and that's what this place is here for. How're you all hanging in? Many hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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