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Joined: Mar 2004
Posts: 263
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Mar 2004
Posts: 263 |
Hi All, I haven't been on for quite a while. I hope all is as well as can be with everyone. I have been on Imuran one month now for Reiters. Just wondering if anyone has tried this drug and your experiences with it? I haven't had any benefit from it yet but lots of nausea and mouth blisters. Fun Fun Thanks lots Julie
Julie Kodi
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Sorry,
I haven't tried it, but if you stay nauseated and have mouth sores you might ought to be on something else.
Have you let your Dr. know what is happening?
Lisa
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Joined: Sep 2001
Posts: 6,762
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,762 |
Are you on prescription strength folic acid? All these DMARDS - - I'm trusting my memory here, always a bit dicey, that this is also a DMARD, an immune suppressant - - tend to cause mouth ulcers, which folic acid helps to prevent. How long did they tell you it would be before it works? Or before you know whether it will work? I've been on Enbrel almost a month now, happily there have been no side effects except for a bit of tiredness. Even managed to stick the needle into my leg without fainting, getting kinda good at it  I am taking folic acid and B-12 supplements. Cheryl
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Joined: Sep 2001
Posts: 849
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Sep 2001
Posts: 849 |
I take 6-mp(50mg a day) that is the same as Imuran. The liver changes Imuran into 6-mp. I have been told by many peeps that Imuran gives them these sores. They then switched to 6-mp and like me have very good results.These drugs are given accroding to body weight. I have been on 6-mp for 1 year and get my blood work done every two months. Doc said every 4 months was enough but my neighbor is an oncologist and he does it for me every two you want to stay ontop of any liver issues. I started taking it for Crohns but really have seen a change in my AS too,all for the better.
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Joined: Apr 2003
Posts: 182
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Apr 2003
Posts: 182 |
Hi Julie, I have been on Imuran for 18 months and have had no problem with it. Adriaan P.S. Yoly what is mp?
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I have been taking 150 mg. Imuran daily for over 5 years. It holds my Uveitis at bay. I don't think it helps my back but it does wonders for my eyes. I have no problems with the drug itself. I hope it helps you. Possi
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Mar 2004
Posts: 263
Third_Degree_AS_Kicker
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OP
Third_Degree_AS_Kicker
Joined: Mar 2004
Posts: 263 |
Hi all Thanks for the replies. It helps to hear how others have done on the drug. I do take folic acid regularly. I'll hang in and wait for the positive changes to happen! Thanks again Rene
Julie Kodi
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Renee,
hiya long time no see, hope this calms down for you, I know some who have done very well on imuran, fingers crossed
David
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