|
Forums33
Topics44,197
Posts519,915
Members14,169
| |
Most Online3,221
Oct 6th, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Dec 2004
Posts: 97
Apprentice_AS_Kicker
|
OP
Apprentice_AS_Kicker
Joined: Dec 2004
Posts: 97 |
HI EVERYONE
saw the rheumy today first time I have met this doctor and he was very good,
it turns out the expensive meds are not available on the NHS here in the uk for AS
so he as had to send me for loads of tests to gather as much evidence as possible to make a case that he can put forward to the leeds medical trust or was that leeds medical research to aply for a grant from them to pay for the meds.
I did go with the intentions of telling him i whant the biologics thinking I would be shot down in flames but right from the start he said he whanted me on them and if I was happy with that he would do every thing in his power to get them for me .
he is sure the brain fog is down to my inflammatry gland working so hard.
Is there enyone in the uk had this problem would be great to hear how you got on as this is all new to me
trying not to get to hopefull not sure what the sucses rate is of getting these grants?
hope to hear from some of you soon , tone......
Success often comes in greater measure to those with a greater vision" -
Dean Koontz
"The Face"
|
|
|
|
|
Joined: Apr 2003
Posts: 182
First_Degree_AS_Kicker
|
|
First_Degree_AS_Kicker
Joined: Apr 2003
Posts: 182 |
Hi Tony or should I say yorkshiretone,
Any way I hope you get one of the new drugs soon, I have only had two goes of Remicade and it works well. I am like you mine started at age 10 and tryed everything, nothing I have had in the past is as good as the ANT-TNF drugs thay work so well.
Adriaan
|
|
|
|
|
Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
|
|
Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Good luck, fingers crossed for you "tones"
David
|
|
|
|
0 members (),
545
guests, and
254
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
