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Drewster #108436 05/06/03 09:03 PM
Joined: Feb 2002
Posts: 942
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Posts: 942
Andy,

Better late than to drink White Zinfandel!

About 90% of people diagnosed with AS will have a positive HLA-B27. I am in the other 10%, i.e., I have been diagnosed with AS and my HLA-B27 was negative. (I also have a fused neck and sleep apnea.)

I am glad that you will be seeing a Rheumie; that is the specialty that treats AS. It is a challenge about the NSAIDS; I would echo John's invitation to the NSD forum. You also may want to check the alternatives and pharmacy forum regarding palliative treatment.

I am taking Flexeril or cyclobenzaprine to reduce the pain of muscular spasms after recommendations from people in this forum. It has helped. There also is a newer drug called Neurontin or gabapentin that may, if not contraindicated, help with pain.

Lastly, I had a somewhat unusual reaction to a common drug treatment for AS. The drug was sulfasalazine. I believe that it caused me to have pericarditis, e.g., fluid around the heart. You mentioned other physicians; I did not see mention of a cardiologist. If it were my heart, I think I would want a cardiologist's opinion about treatments that I was considering, whether they were allopathic, alternative or complementary.

Repeating what others already have said, again, welcome to KickAS.

Best regards,

Green Carpet Welcome

Note: The information provided above constitutes an exchange among peers in mutual support. The reader should seek appropriate, medical advice from a health practitioner.


Drewster #108437 05/07/03 02:00 AM
Joined: Sep 2001
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AS Czar
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AS Czar
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Hi, Andy:

In captivity, lions get AS but it has apparently not been identified in wild creatures. There is probably a very good reason for this.

Best Regards,
John


jcwinnie #108438 05/07/03 01:47 PM
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Posts: 253
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Posts: 253
Jonathan(?),

Thanks for the information. I have a lot of learning to do, it seems, and I've only just begun! Like, I have to look up "allopathic" to even know what you're talking about! I have a regular cardio, but I figured I'd discuss things with him after I've seen the rheumy and find out what he says.

Regards,
Andy


It only hurts when I laugh.
Too bad I find life so funny...






Joined: Apr 2003
Posts: 253
KickAS_tronaut
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Posts: 253
John,

Interesting information about Lions!

In reply to:


There is probably a very good reason for this.


I'm sure most wild animals won't sit still for an MRI or even an x-ray!

Regards,
Andy



It only hurts when I laugh.
Too bad I find life so funny...






Joined: Nov 2001
Posts: 18,187
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Yeah. Who wants to tell a wild lion that he's going to feel like hell for the rest of his life!

Kat



Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Drewster #108441 05/07/03 08:38 PM
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Andy,

Allopathic means the witch doctors with beepers.

Best regards,

jcwinnie

allopathic

There are two types of medical schools: allopathic and osteopathic. Allopathic doctors are the traditional Medical Doctors (MDs) and osteopathic doctors are Doctors of Osteopathy (DOs). Both may prescribe medication and perform surgery. The difference between the two lies in the philosophy of these divergent branches of medicine. Allopathic medicine has been around for several centuries; osteopathic medicine was founded in 1874 by Andrew Taylor Still who focused on treating the whole person and not just the ailment he or she presented.



jcwinnie #108442 05/08/03 03:43 PM
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Posts: 253
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jcwinnie,

Thanks for the education! It's funny, because a good number of years ago, a friend of mine got me to go to his Osteopath, and I found it interesting, but I guess I was a little disturbed because he was doing manipulation as well as everything else. I only went to see him a few times. Maybe I'll have to find out more...

Regards,
Andy


It only hurts when I laugh.
Too bad I find life so funny...






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