Originally Posted By: rumble
This is the way I'm thinking of Remicade, too. It may have risks, but the eventual progression of this disease is scarier right now. Thinking I may not be able to continue doing the job I do (my job provides our medical insurance) is scary.


last fall being out of work a few months was a reality check for both my husband and me. i think i'm more of an optimist (this is a one time deal, i've never had to take off work before) but my husband is more of a realist (this may just be the beginning and things could get worse from here). so now when he goes to my doctors appointments with me, its mostly as the voice of "she needs to be treated more effectively because she's losing the ability to function." i am the main bread winner and the one with our health insurance. so if i can handle the side effects of a drug, at this point i'd be willing to try almost anything that would allow me to live my life, keep my job, etc. for me its balancing the certainties of today against the maybes of tomorrow.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)