Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; Frustrating relapse - any advice?

Exacta - I have NO sympathies- binging - indeed !! Flares follow binges sure as lighting a fire will keep you warm <LOL>
Take care over there -

Is there any prevailing theory about why cheese causes flares?

From what I read, dairy isn't good because it contains lactose and lactose feeds klebsiela. Not sure if that's acurate so hopefully someone can provide more info on this.

Hi, Exacta:

Cheeses which are soft contain a lot of lactic and galactic acid; Carol's dodgy disaccharides. Klebsiella can do quite well on these and it is a milk fermenter, so basically everything derived from it is a fringe food. When I first began NSD, I had a terrible flare from too much mozzarella. Lesson learned: Cheese is a condiment and not the whole meal!

HEALTH,
John

Is this true of something like Stoneyfield organic greek yogurt? Should this be eaten in moderation as well?

Hello, Exacta:

Yoghurt is one of the offenders and should be eaten to help heal the gut, but not very much should be eaten. I used to consume half a serving (2 ounces) in a day, maximum. That seemed to help avoid the flare, and along with supplements I was able to repair my tract. Stonyfield Farms is the best brand I have found.

HEALTH,
John

I had a rough week between going out of town for vacation and then visiting relatives. I avoided grains, but gave into social norms with borderline foods like squash, ginger, etc.

I ended up doing a 36 hour fast which helped quite a bit. Because I was diagnosed so early (within months of symptoms) with AS, I was very hopeful that I could alter my diet for a few months, and return to somewhat normalcy. It has now been 5 months of a pretty strict NSD, and I am definitely not symptom free.

I am going to keep at it, because the diet certainly improves my symptoms. I am also going to consider trying a different biologic as the Humira seems to do nothing for me.

I should note I am seeing my rheumy on Monday 4/17, so let me know if there is anything I should consider asking or discussing.

Exacta - being with chums is so tempting. But y're back on track now. Good.

Have you tried the curcumin / turmeric protocol ? Fresh grated rhizome or buy in powder form. Add to pretty much any dish you are making, with fresh ground black pepper and a saturated fat of some description. Great on fried eggs - fry in organic virgin coconut oil (butter). Great in soups, any meat dish. Vegetable, any dish really.

Also, LDN. Low dose Naltrexone. Lots of information here on the alternatives forum. I learnt of LDN here on KA, that was some 12 years ago, and haven't looked back. Good website for LDN is the yahoo group, Low dose Naltrexone Research Trust. Much information. A place to ask all your questions.

Give everything a chance to kick in. Nothing is an overnight magic wand.

Have a good consult on the 17. Take care.

Alcohol is one of the worst triggers for me, i get AS and Gout like symptoms and it absolutely reverses the hard NSD management that has given me great results. To much protein seems to be a trigger for me as well.