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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hi Oksana, I think the new neck pain could definitely be due to AS, unless you have done something obvious recently that may have caused an injury. I guess that is the bad news, AS can jump to a new place without warning and will not always ascend the spine as predictably as much of the literature suggests. The good news is, in the early years with AS, it is likely to disappear from your neck for months (or even years!) and go back to attacking whatever is normal for you. If I remember correctly, I think I was 21-23 y/o when AS decided to attack my neck for the first time, right out of the blue. I was on a vacation and didn't know what was going on, it was excruciating, and lasted for about 2 weeks. It was a driving vacation with me as the only licensed driver.  We had to delay our planned date of return because I could not turn to look left or right without extreme jabbing pain and just holding my head up was painful. I hope the neck pain leaves you alone soon - it can be horrid.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Hi Oksana, I think the new neck pain could definitely be due to AS, unless you have done something obvious recently that may have caused an injury. I guess that is the bad news, AS can jump to a new place without warning and will not always ascend the spine as predictably as much of the literature suggests. The good news is, in the early years with AS, it is likely to disappear from your neck for months (or even years!) and go back to attacking whatever is normal for you. If I remember correctly, I think I was 21-23 y/o when AS decided to attack my neck for the first time, right out of the blue. I was on a vacation and didn't know what was going on, it was excruciating, and lasted for about 2 weeks. It was a driving vacation with me as the only licensed driver. We had to delay our planned date of return because I could not turn to look left or right without extreme jabbing pain and just holding my head up was painful. I hope the neck pain leaves you alone soon - it can be horrid. I just want to follow up with what mig has said. For years, my neck problems were intermittent. Now they are pretty much here to stay, but even with that, there are things I do that make it manageable except when I'm in a big all over flare. Like for example sleeping in my recliner now instead of a bed. Or another example; not sitting in most chairs. I know which chairs set it off and which don't and so am very careful about that. Other things too, but basically saying, even if the neck problems become chronic, there are still things that one can do to minimize the problems…..the Humira helps keep the inflammation down…what's left is the damage that occurred over the years before I could find a rheumy to treat me…...
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Oct 2012
Posts: 190
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Oct 2012
Posts: 190 |
Hi Oksana, I think the new neck pain could definitely be due to AS, unless you have done something obvious recently that may have caused an injury. I guess that is the bad news, AS can jump to a new place without warning and will not always ascend the spine as predictably as much of the literature suggests. The good news is, in the early years with AS, it is likely to disappear from your neck for months (or even years!) and go back to attacking whatever is normal for you. If I remember correctly, I think I was 21-23 y/o when AS decided to attack my neck for the first time, right out of the blue. I was on a vacation and didn't know what was going on, it was excruciating, and lasted for about 2 weeks. It was a driving vacation with me as the only licensed driver. We had to delay our planned date of return because I could not turn to look left or right without extreme jabbing pain and just holding my head up was painful. I hope the neck pain leaves you alone soon - it can be horrid. And how's your neck now mig?
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hi Wilhelm, Now? It is pretty good!  My neck continued to get worse over time, but along came Remicade which thankfully quieted down the majority of the pain I used to live with constantly (hips, back, rib cage, neck). It also solved very stubborn chronic iritis. I have a bit of neck fusion, but it does not seem like it has progressed in the past 9 yrs on Remicade. I feel very lucky.
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