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Joined: Jul 2007
Posts: 1
Lurker
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OP
Lurker
Joined: Jul 2007
Posts: 1 |
I have been on enbrel for 10 years with minor flare ups. In the last few months I have a flare up every other week. The last flare up put me in bed all week, I can barely walk without a cane and getting around my house is nearly impossible. My doctor is now recommend I start Humera, but I have read some horror stories and wanted to see what other people think.
Thanks!
Billy C
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Hi Billy. My 5 months (January - May, biweekly self injected shots) with Humira produced nothing really as I didn't notice one bit of difference so I just stopped. Others see relief in days which is fantastic! Lots of people have gone from one Remicade to Humira to Enbrel etc....and I was just reading an article recently that recommended people do just that if one doesn't work or stops working.
My next step for me is to give Low Dose Naltrexone a try. I've heard it works well for some and others got nothing from it.
Ah well, I'm still hoping that individual genetic manipulation comes around sometime. Now that could be a true cure!
One of our mainstay premises here is that everyone's wired differently (my doctors really agree with that, heh) so any blanket statement on a medicine/procedure/therapy must be taken with a huge grain of salt and even called out.
Timo 
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
 Hello, I hesitantly give my experience because I don't want to influence any one. We all are different and respond differently to the drugs. That said, I didn't tolerate it but then I didn't tolerate any of the Biologics. That being my personal reaction to medications. My bp dropped drastically with the first injection so my dr. had me to not inject again. It took a few days to get back to normal. So many people have a wonderful response to it. There are several people on the board who are loving it right now. I am sure they will post soon. Hope it helps you if this is your decision. Making decisions on what we treat with is very hard and a very personal decision. Blessings.
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I'm one of the people that had an immediate positive response, no negative side effects.
I am flaring now as I flare badly every august (ragweed response we think) and so am having to help the humira along with some methylprednisone.
But yeh, for me, it was the gift I was hoping it would be.
We started with Humira because its a human antibody and so less likely to cause an allergic response.
If you did well on Enbrel, no reason to believe you couldn't do well with the Humira.
As others have said, we're all different, but I wouldn't be any more afraid to try Humira than to try the Enbrel, and you've already done that.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jul 2013
Posts: 5
New_Member
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New_Member
Joined: Jul 2013
Posts: 5 |
I've been on Humira for 7 weeks. I felt better the day after my first injections. I have been pain-free for the first time in 22 years since starting Humira. I went kicking and screaming down the path to Humira as I too was anxious about potential side effects. But when the SCD and meds (Sulfasalazine and Liadal) did not quell a very prolonged and stubborn flare, I decided that comfort and quality of life were worth any risks. I do not regret my decision for a second. For full disclosure, I have Crohn's too and Humira is indicated for both conditions. I have either run, biked, hiked, played golf, or played ice hockey every day since starting Humira. I feel that it is my duty to take advantage of how well I feel. Not bragging, just happy to finally feel like a normal person after 22 years of constant pain. You owe it to yourself to give either Humira or another biological a try.
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I've been on Humira for 7 weeks. I felt better the day after my first injections. I have been pain-free for the first time in 22 years since starting Humira. I went kicking and screaming down the path to Humira as I too was anxious about potential side effects. But when the SCD and meds (Sulfasalazine and Liadal) did not quell a very prolonged and stubborn flare, I decided that comfort and quality of life were worth any risks. I do not regret my decision for a second. For full disclosure, I have Crohn's too and Humira is indicated for both conditions. I have either run, biked, hiked, played golf, or played ice hockey every day since starting Humira. I feel that it is my duty to take advantage of how well I feel. Not bragging, just happy to finally feel like a normal person after 22 years of constant pain. You owe it to yourself to give either Humira or another biological a try. That's awesome news! 
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Aug 2013
Posts: 5
New_Member
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New_Member
Joined: Aug 2013
Posts: 5 |
I was on Humira for 4 months and was almost pain free in about 48 hours. I was definitely very immune compromised on it and had a number of infections right out of the gate - strep, anti-biotic resistant UTI and then leveled out. Unfortunately, I developed antibodies to it and it completely stopped working within 4 months. I was switched to enbrel, which was not nearly as effective for me and then added methotrexate in. Still not nearly as effective as humira was before the antibodies.
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