Hi everyone. It's been a while since I've visited these forums. I really do hope you are all doing okay!
It took me a long time to decide to write this message. I feel as though I have definitely matured as a person since I visited here in the past. I rarely ever complain about my problems now, but at this stage I feel like I need any kind of help/advice I can get. I don't really have anyone to talk to about these problems in my life and whenever I have needed support, people from Kickas have always been there to help me.
I wish I had some positive news to report, but unfortunately I'm still in a bad state. Within the past year I have been on Humira and Enbrel with no result. Literally nothing. No positive effects or negative side effects even. It seems like they were both about as effective as injecting water into my body.
I'm 21 years old now. I'm watching all of my friends succeed while I still haven't finished my university degree and I am only taking one paper a semester. I SERIOUSLY struggle to wake up before 11am every morning and as soon as I get home at about 2pm in the afternoon the pain and fatigue are both so intense that I end up crashing and waking up between 6-8pm every night. It's just horrible and really is no way to live and experience life. I can't rely on my parents to put a roof over my head and food on my table forever. I must find a solution, otherwise I simply won't be able to make it through this life. The thought of trying to work a 40 hour week in the next couple of years is terrifying when I can't even sit in a chair for more than 15 minutes without wanting to scream from the pain.
Simply put, I genuinely feel like I'm fighting for my life right now. This disease is just crippling me and the depression that is accompanying it is almost more dangerous. I am really unsure of what I'm trying to get out of this post but at this stage I just don't know where else to turn...
Thanks,
Seb
