I went on the waiting list around the first of December. I got a letter from them January 9 saying that I will get the drug as soon as it is available. I took myself off the waiting list February 1, after I was accepted into clinical trials. Maybe I should have stayed on the list. I'll only get the drug for a 18 months in the study. Looks like the wait may end up being that long.

I'm sure that it doesn't work for everyone, but I wish everyone could have the opportunity to at least try Enbrel. It has been a miracle for me.

Hugs,

Cindy


Hugs,

Cindy

Back pain since early childhood. Dx'd with HLB27 iritis in '96, AS in 2001, FMS in 2002.