Colin,
I am also HLA negative though I match enough other criteria to have a dx of AS (SI sclerosis, SED rate and whatever else they look for).
As a matter of fact, the test has been done on me REPEATEDLY, and comes back neg each time.
I do know how frustrating it can be to not have a dx. For like 5 mins, 1 rheum took back the AS and dx'd polyarthritis on some form instead?! I was baffled. Then she decided it was AS again...
I just hope you are taking good care of yourself, you are hurting, and whether or not they have a name for what you have, I hope they are treating you as best they can.
By the way, I am on anti-TNF. When your immune system is misfiring and actually hurting you, guess there's not much better out there right now. But they are getting closer to new treatments and a possible cure (to "reset" immune system) everyday.
Be well, Jessica
Dx'd AS (seronegative spondylarthopathy), Fibromyalgia 8/2007
Be happy for this moment... This moment is your life.
