Hey Bro.
I've spent quite a lot of time deliberating over how to reply, and even now I'm not sure I'll get it right.
Your posts have been most thought provoking but distinctly different from most first-time posters. Most people just say hi, or ask a question, or get involved in a discussion, but that hasn't been the case here. Not criticising, but as someone who's been around KA for a good five years the difference is hard to miss.
Before we start changing the world together, why don't you tell us a little bit more about yourself? Do you have or know someone with AS? Another rheumatological or chronic pain condition? How long? What works best for you (or them)?
I know this probably sounds cynical, and possibly rude, but both of your posts have been so full-on, but you haven't told us much about yourself in posts or in your profile. That's certainly your perogative, and you don't have to answer my requests, but I'm not sure I'm going to start lobbying for change or modifying a great place like KA with a virtual stranger.
Jeanna
